I’m Andrew O’Bryan and on June 11, 2010, a tumor was found in my left leg from the knee down and I was diagnosed with Stage 2b Osteosarcoma (bone cancer). My life as a 12-year-old boy changed forever. I received chemotherapy at Upstate Hospital 2-3 weeks each month for a year. I was inpatient for all my treatments.
On September 8, 2010, I had rotationplasty surgery to remove the tumor. Rotationplasty is a very unique surgery in which doctors amputate the leg, remove the cancerous parts and then reattach the leg so that the knee is the foot, giving me a natural knee joint. But on September 10, 2010, I had an emergency amputation due to vascular issues. I have an above the knee amputation of my left leg. I also had an infection in my stump in October, which put me in the hospital for 3 weeks. On March 30, 2011, I had a revision of the stump to shave the bone down further as it was growing too fast. Today, I have a prosthetic leg.
Prior to my diagnosis I was very athletic, playing baseball and point guard on my basketball team. Between my diagnosis and surgery, I missed my entire 6th grade year of school while being tutored at home. Thankfully I finished treatment in June of 2011 with a goal to play sports again!
I am almost 3 years NED(No evidence of disease)!! Since then, I’ve played football, basketball, golf & swimming for my school. Recently, I made sectionals in swimming this year, my first year on the team! I also relearned how to ride a bike this past summer, a personal goal of mine. Today, I speak at cancer events about childhood cancer & being disabled. One day I hope to be a police officer & motivational speaker one day.
The doctors, nurses, and support system at Upstate Golisano Children’s Hospital are wonderful. We are so blessed to have such an amazing facility near our home. We WILL Either Find A Way Or Make One!
Kyle Malcott is 13 years old and loves all sports, soccer being his favorite to play, as well as basketball and baseball. He loves to watch the New York Yankees, SU Orangemen, NY Knicks and NY Giants for football.
In November of 2013, Kyle started having headaches, nausea and vomiting. He was playing for the school basketball team and he came home saying he had a headache and went to bed. This went on for a few days so we took him to our regular doctor, who said it was a virus. A week later Kyle still wasn’t feeling right and went to the eye doctor to see if his vision was the cause. The doctor at Vision Works in Fulton looked into his eyes several times after the eye exam, saw pressure behind Kyle’s eyes and said, “If it were my child I would take him to the Upstate ER.”
After eight hours in the ER at Upstate, a CT scan showed a mass on Kyle’s brain. Never in our wildest dreams did we expect what was ahead of us, our whole world tipped upside down. He was admitted to Golisano Children’s Hospital where he underwent 3 surgeries, a biopsy of the tumor and a permanent shunt. We left the hospital 10 days later with no results of the biopsy yet.
On December 12, we found ourselves receiving news we did not want to hear – it was pineal parenchymal, a cancerous tumor. As of mid March 2014, he has finished with six weeks of chemo and radiation. Kyle will have a six week break, then return to Upstate for a six rounds of chemo. Everyone at the Cancer Center has been awesome in getting us through this nightmare. We are praying for the best!