Connor was diagnosed with a Wilms Tumor (Kidney Cancer) at 4 1/2 years old, Since that time we still continue our fight EVERYDAY, Things are easier, things get better….but Childhood Cancer always remains and the affects it brought with it remain as well.
Connor continues to fight the battle of the long term side effects daily, his stomach issues seem to be continuously worse which bring additional testing and medicines, as well as his short term memory, causing school to be a continuous struggle and effort for him.
Cancer has become more a part of Connor’s life, remembering and talking about it more often than not. His curiously about this disease leaves him with many questions, but I BELIEVE this only makes Connor fight to remain stronger every day.
Connor continues to go to Upstate Medical/Golisano Children’s Hospital every 3 months for check-ups and scans, In May Connor will have his 3 years Off Treatment scan day, if it continues to show NO EVIDENCE of DISEASE, he will move up to every 6 months, A huge feat and day that I have anxiously awaited!
On June 11, 2010, I was diagnosed with Osteosarcoma (bone cancer) stage 2b. The tumor was in my left leg from my knee down. My life as a 12-year-old boy changed forever. I received chemotherapy at Upstate Hospital 2-3 weeks each month for a year. I was inpatient for all my treatments. On September 8, 2010, I had rotationplasty surgery to remove the tumor. It is a very unique surgery. The doctors amputate the leg and remove the cancerous parts and reattach the leg so that the knee is my foot, giving me a natural knee joint. But on September 10, 2010, I had an emergency amputation due to vascular issues. I have an above the knee amputation of my left leg. I also had an infection in my stump in October, which put me in the hospital for 3 weeks. On March 30, 2011, I had a revision of the stump to shave the bone down further as it was growing too fast. I have a prosthetic leg.
I was very athletic, playing point guard on my basketball team and I also played baseball. I missed my entire 6th grade year of school. I was tutored at home. After my year of treatment, my goal was to play sports again! I finished treatment in June 2011.
I am almost 3 years NED(No evidence of disease)!! I’ve played football, basketball, golf & swimming for my school. I made sectionals in swimming this year, my first year on the team!! I also relearned how to ride a bike this past summer, a personal goal of mine. I also speak at cancer events about childhood cancer & being disabled. I hope to be a police officer & motivational speaker one day.
The doctors, nurses, and support system at Upstate Golisano Children’s Hospital are wonderful. We are so blessed to have such an amazing facility near our home. We WILL Either Find A Way Or Make One!