My name is Landen. I am nine years old, and I’m in fourth grade. I go to school at McAllister Elementary in Sherrill, NY. I am a very normal nine-year-old boy. I like to play soccer, video games, and hang out with my friends. But I am also different because of my disease, called XIAP deficiency. This is a disease that has weakened my immune system. It is an autoimmune disease. I have episodes that make me very sick and sometimes miss school. I get very high fevers and have lots of pain in my stomach. My body feels weak, and it hurts to stand. I see doctors at Upstate Cancer Center in Syracuse and Cincinnati Children’s Hospital. I’m always at the doctor’s getting blood work and treatments. We have not found a treatment that works yet. The only cure for my disease is a bone marrow transplant. I want to have the cure, but I’m told that it would make me very sick for a long time. My disease is horrible. It runs my life because it makes me miss out on really cool stuff. I am thankful for Paige’s Butterfly Run because they gave me two Peds Pals. Joseph and Jessica take me out to do cool stuff. They make me happy. They also came to see me in the hospital when I was sick. That made me happy too. I know that the doctors are working hard to help me feel better. I want the doctors to cure me, so I can end this horrible disease.
Physical & Mailing Address:
50 Presidential PLZ;STE 106
Syracuse, NY 13202
Email: [email protected]
Raising funds with integrity to benefit current and future pediatric cancer patients and their families in Central New York through the sponsorship of pediatric oncology research and patient programs at Upstate Golisano Children’s Hospital in Syracuse.